Andrew Bryans

Sam and Sven's National Three Peaks challenge page

Fundraising for The AADC Research Trust
£3,192
raised of £5,000 target
Donations cannot currently be made to this page
The 3 Peaks challenge, 13 August 2017
Participants: Sam Allen
The AADC Research Trust

Verified by JustGiving

RCN 1114367
We fund AADC medical & scientific research to improve the lives of our sick children

Story

Thanks for taking the time to visit my JustGiving page.

Let us share the journey so far for our beautiful children with AADC Syndrome. Please follow the below link. We loose approx 3 children every year with this devastating brain disease.

https://youtu.be/beKaBQwlz8Y 

We (Sam Allen and Sven Grove) are 2 dads of very special children. Our boys (Marcus and Ted) have a rare condition called The AADC Syndrome. A very rare brain disease that affect about 100 children worldwide with our boys being just 2 of the 6 children in the U.K. 

This terrible condition means that all children suffer with many terrible symptoms which prevent them performing the simplest of tasks. Everyday they climb a mountain! 

So here we are taking on a challenge to help improve the lives of our children and others like them. 

3 highest peaks in Britain in 24hrs! Starting with Ben Nevis(Scotland), Scarfed Pike(England) then finishing with Snowdon(Wales)! Its called the National Three Peak Challenge. 

42km total horizontal distance, 3000 vertical metres, 3 Peaks.

Every pound donated will help the effected children stand a chance of a better life. Next year the AADC Research Trust will begin gene therapy trials which will Improve the quality of our children lives.

Every penny raised goes towards this vital research into this very rare condition. Thank you so much in advance for your donation and support.

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About the charity

The AADC Research Trust

Verified by JustGiving

RCN 1114367
AADC deficiency is a rare disabling brain disease. More than 100 children in 30 countries have been identified with the disease. It's proved fatal for some of them. The AADC Research Trust is a children's charity funding research, supporting affected families and promoting global disease awareness.

Donation summary

Total raised
£3,191.79
+ £345.00 Gift Aid
Online donations
£2,091.79
Offline donations
£1,100.00

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