Story
Thanks for taking the time to visit my JustGiving page.
Let us share the journey so far for our beautiful children with AADC Syndrome. Please follow the below link. We loose approx 3 children every year with this devastating brain disease.
https://youtu.be/beKaBQwlz8Y
We (Sam Allen and Sven Grove) are 2 dads of very special children. Our boys (Marcus and Ted) have a rare condition called The AADC Syndrome. A very rare brain disease that affect about 100 children worldwide with our boys being just 2 of the 6 children in the U.K.
This terrible condition means that all children suffer with many terrible symptoms which prevent them performing the simplest of tasks. Everyday they climb a mountain!
So here we are taking on a challenge to help improve the lives of our children and others like them.
3 highest peaks in Britain in 24hrs! Starting with Ben Nevis(Scotland), Scarfed Pike(England) then finishing with Snowdon(Wales)! Its called the National Three Peak Challenge.
42km total horizontal distance, 3000 vertical metres, 3 Peaks.
Every pound donated will help the effected children stand a chance of a better life. Next year the AADC Research Trust will begin gene therapy trials which will Improve the quality of our children lives.
Every penny raised goes towards this vital research into this very rare condition. Thank you so much in advance for your donation and support.
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