Hello! So, I have decided to run the Great South Run in October. I have chosen to run for the Fiberous Dysplasia Support Society.

I have a mild case of Fibrous Dysplasia which caused me a lot of pain growing up. It's a rare condition which can affect 1 in 1 million people. In the 90s growing up there was limited information about it, I was passed on from doctor to doctor with them not knowing what to do with me. But now, I'm pleased to say there is a lot more knowledge being shared from Specialist to specialist.

The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.


Fibrous Dysplasia (FD) is an uncommon bone disease that can affect any bone in the body. The severity of the disease covers a wide spectrum. It can affect a single bone and go unnoticed for years, or it can affect virtually every bone, start very early in life, and result in significant physical impairment. It is caused by a defective gene in the cells that form bone. The cause of the gene defect is unknown, but the defect is neither inherited from the person's parents, nor passed on to the person's children.

With the money that is raised, it will help cover costs of the website and yearly meetings with patients, carers and specialists that provide care, treatment and support for them and families.