Joe Barker

MLD Support UK

Fundraising for MLD Support UK
£390
raised of £250 target
Donations cannot currently be made to this page
Event: Vitality Run Hackney Half Marathon 2016, on 8 May 2017
MLD Support UK

Verified by JustGiving

RCN 1150542
We support families and fund research to find a cure and raise awareness of MLD

Story

Early last year a close friends sisters little girl Paige was diagnosed with MLD (Metachromatic Luekodystrophy) a rare and incurable life limiting brain disorder. A few months into the pregnancy of the twins the family found out that the twins may also have the disorder. Another blow came when the twins were two weeks old and tests showed that the twins did have MLD. They are being involved in pioneering gene therapy treatment in Italy which has so far shown amazing results in other children. Everyone is keeping there fingers and toes crossed that the treatment for the boys, and making many happy memories with Paige. I'm wanting to raise money to raise awareness and help fund research into this horrible disorder. 

Please dig deep. 

Read more about there story here: http://www.wymondhamandattleboroughmercury.co.uk/news/eccles_family_to_take_twin_boys_abroad_to_treat_incurable_disease_that_has_robbed_sister_of_ability_to_walk_and_talk_1_4390966

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About the charity

MLD Support UK

Verified by JustGiving

RCN 1150542
MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). We support families affected by MLD, fund research into therapeutic procedures and, as it is a rare disease, provide information about MLD to ensure early diagnosis.

Donation summary

Total raised
£390.00
+ £53.75 Gift Aid
Online donations
£390.00
Offline donations
£0.00

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