Story
As some of you are aware my son William
who is 19-month-old has congenital hyperinsulinsm (CHI) - meaning his blood sugar is constantly so low, he can suffer from dangerous low bloods at any time during the day or night . William requires 24hr care to keep him safe .
Just 1 in 50,000 children are diagnosed with the condition .
William's condition was unknown until he was born five weeks early, weighing 9lbs 11oz.
He was born grunting, and doctors quickly checked his blood sugar and it was at just 0.7mmls - which is dangerous low .
Complications of Hyperinsulinism
"The most severe long term complication is brain damage. Even in the centers most experienced in treating children with HI, there are children who suffer permanent damage. For all children, the development of learning disabilities is difficult to predict and depends not only on the frequency of low blood glucose but also the duration of a hypoglycemic episode. In addition to learning disabilities, other neurological problems sometimes occur such as poor motor coordination, cognitive delays, or cerebral palsy. Strabismus (turned in eye), nystagmus (involuntary motions of the eye), or blindness may also be caused by hypoglycemia.