Thanks for taking the time to visit my JustGiving page. This is the big one guys... For many of you that know me, someone very special in my life was born with Klipple Trenauny Weber Syndrome and exactly 8 years ago, the symptoms of this Syndrome nearly took her life... Her pure strength and determination, and the ability of certain doctors to link the symptoms with this un-heard Syndrome, ensured she has gone on to have a fantastic life and has grown into a wonderful young lady.. When something so rare effects those that you love, you have to give something back and I personally want to ensure we help this amazing charity invest in further research and above all awareness, as the more we understand the better in can be handed.. At the end of April I take on this challenge and any help of support you can give me, would mean so much.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.