Peter Thornton

Andy's NETwork Fundraising Page 2016

Fundraising for Net Patient Foundation
£17,806
raised of £15,000 target
Donations cannot currently be made to this page
In memory of Andrew (Andy) Cripps
We Exist to Improve lives and outcomes for NET Pts

Story

Andy Cripps, passed away suddenly in January 2011, aged just 48, just a few weeks after a late diagnosis of a rare type of cancer - a neuroendocrine tumour (NET).

The NET Patient Foundation is a small charity that supports patients with a NET and promotes awareness and research for this awful, rare disease (less than 1% of all cancers & 39% of NET patients are initially wrongly diagnosed).

Since Summer 2011 Andy's friends and family have supported annual golf/dinner charity events raising just over £26,000 for the NPF (including direct donations not made through this site). 

The last event was on 13th June 2015, when the sun shone on 35 experienced and less experienced golfers at the 5th Annual Charity Golf Day held at Pine Ridge Golf Club in Camberley. This was followed by an auction, which raised £1570 alone, with the final event total just over £3,000.  Thank you to all those who attended this year, whether during the day or in the evening at the "19th Hole", and also to those of you who have supported the event and the NET Patient Foundation in the past.  

Funds raised have so far been used towards:

- A booklet has been produced that helps answer questions for patients and family of those diagnosed with a NET. 

- Andy's Story also appears on the new interactive GP desktop tool to help raise their suspicion that certain symptoms could be a NET and encourage referral for investigation.
 
BACKGROUND:
Andy passed away peacefully after a late diagnosis of this rare cancer a few weeks before his untimely death on 22nd January 2011, aged just 48, after being treated for backache, sciatica and similar symptoms for several months. His sudden death was a huge shock and loss to myself, his sons Harry and Scott (aged 15 at the time) and his large family and wide circle of friends.

The cruel facts of NETs is that over 90% of NET patients are initially treated for the wrong disease and a correct diagnosis is not usually made until the cancer has spread. (Andy was treated for backache and sciatica, before being referred for abdominal scans the month before his death, when the large tumour was discovered). This charity uses a moth as it's logo, to symbolise this 'camouflaged' condition, as when you see an insect beating it's brightly patterned wings against a window, don't assume it's a butterfly...it could be moth. Through their awareness campaigns the charity aims to encourage medical professionals to consider uncommon alternatives (i.e. a NET rather than an IBS?) when making a diagnosis. 

Hopefully with increased awareness by the medical profession, new sufferers will be diagnosed and treated earlier, with a better chance of surviving; 53% of all cancer deaths are caused by the rarer cancers. The money raised to date has helped fund this campaign and hopefully make a difference to others in the future with earlier diagnosis. 

By donating via this webpage, you will be supporting the research and awareness to hopefully prevent others from the same fate as Andy.

Love from Julie, Harry and Scott
XXX

Thanks for taking the time to visit my JustGiving page

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About the charity

The NET Patient Foundation is the only charity in the UK and Ireland that offers information and advice to those affected by neuroendocrine tumours, works to raise awareness of these unusual cancers, and raises funds for vital research projects.

Donation summary

Total raised
£17,805.20
+ £4,271.93 Gift Aid
Online donations
£17,805.20
Offline donations
£0.00

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