Jane White

Andy's Chamonix to Venice 2016

Fundraising for Kennedy's Disease UK KD-UK
£7,138
raised of £5,000 target
Donations cannot currently be made to this page
Chamonix to Venice 2016, 16 July 2017
Kennedy's Disease UK KD-UK

Verified by JustGiving

RCN 1160793
We raise funds for research and awareness to have a future without KD

Story

Around 40 of us are riding from Chamonix to Venice to raise money and awareness for Kennedy's Disease.

http://kennedysdiseaseuk.com are the only UK based charity for Kennedy’s Disease (KD); a non-profit organisation run by volunteers and sufferers. 

The aim of the ride is to help raise awareness of this awful disease and we want to make sure that people out there hear about Kennedy’s Disease and the effect it has on sufferers, carers, family and friends. There is  only one centre carrying out vital research in the UK and we hope that our efforts will help them to find a cure for the disease.

The trip itself is entirely self-funded (hotels, food support team etc) so all proceeds go straight to the charity.  It will be an enormous challenge over the 8 days,  covering more than 1000kms over the Alps with well over 20,000 metres of climbing. 

The 'highlights' are:

- 8 days
- 1024 kms
- 22 major climbs
- 19285 metres of ascent, just on those main climbs
- biggest climb is 24.8 kms at a 7.5% average
- 2 days over 170 kms

Frank who is a friend of a number of us and suffers from Kennedy's was hoping to complete the climbs with us on an electric assisted bike. Sadly his health has deteriorated and this is now not going to be possible.



Kennedy's Disease UK (KD-UK) is the only UK based charity raising funds to help raise awareness of this awful disease, which affects a very good friend of the riders. We want to help make sure that this rare, often misdiagnosed disease is recognised as well as making people aware of the effect it has on sufferers, their families and their friends. There is only one centre carrying out vital research in the UK and we hope that our efforts will help them find a cure.

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About the charity

Kennedy's Disease UK KD-UK

Verified by JustGiving

RCN 1160793
KD-UK wants to raise as much money as possible to help UK researchers find a cure for Kennedy's Disease so Dads and Grandpas can stay strong and keep being active Dads and Grandpas. We need to raise awareness about this disease for a future without KD. With your help we can achieve this.

Donation summary

Total raised
£7,137.74
+ £982.50 Gift Aid
Online donations
£6,212.74
Offline donations
£925.00

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