Story
I'm doing the 30 mile walk to raise funds for ROSY. ROSY are a Oxfordshire based charity that have provided essential care and supported our family to help look after our daughter, Siena. Siena was born with a de novo rare genetic syndrome called Rubinstein-Taybi syndrome back in 2009. So far Siena has required over 11 different medical operations in her short life. ROSY have helped us immensely with respite nursing care, home-cooked dinners, equipment and emotional support.
There are many other families in Oxfordshire with children who also have complex medical conditions and syndromes. We've benefited greatly from being involved in this community of families that ROSY support.
I'm raising funds for ROSY so that this invaluable charity may continue to provide this essential care and support that is so welcome during these incredibly difficult times.
Thanks for taking the time to visit my JustGiving page. Thank you very much for donating money to this essential local charity that supports sick children and their families.