Story
Harvey John Collins was born prematurely on 14 June 2011 A much-celebrated moment. His quick arrival and born with his hand held along side his face caused the shape of his head to flatten on one side.
He held his head in one position for comfort and quickly the muscles in his neck shortened (torticollis) causing him pain and discomfort to move it to the other side.
Despite doctors having repeatedly telling his mum Harriet that his head shape would right itself with growth, Harvey was recently diagnosed with severe plagiocephaly. Harriet, was told that the condition was so severe that his eye , ear and forehead had bulged and eventually he may dislocate his jaw as it grows. At least he faces years of dentistry to correct his bite and bullying for his deformity.
The only treatment that would offer any significant improvement to the shape of Harvey's head would be a STARband cranial remolding orthoses helmet. These are not available on the NHS. The NHS views this condition as cosmetic.
As Harvey's family we only want the best for him and are trying to raise the funds for him to have this treatment. Harvey will need to wear a special helmet for 23 hours of the day for up to a year. Alongside weekly physiotherapy he will also have to attend fortnightly visits to the Ahead4babies Clinic in London.
After the lengthy treatment Harvey will have a much improved shape to his head. This condition is treatable, although we are late in treating as most babies are treated at 4-5 months Harvey is now 9 months it is not too late as the skull slows down at 12 months.
Please, please, please help us to raise money for Harvey's helmet and the charity that supports families and children with this condition by making a donation.
We will also be organizing fundraising activities to raise awareness of the condition and also raise money for the charity to enable them to provide financial assistance to other families.
Christine Edwards will be doing a sponsered swim 5miles @ Kettering Swimming pool at the beginning of May -you can make a donation of sponsership here.
A plant sale will take place at Hill Top Nursery, Kettering Road, Islip
Nr Thrapston on Friday 6 April
You can support us by coming along and buying a plant or two
If you cannot make it on that day you can buy a virtual plant by donating £1 or more. For each virtual plant you purchase Hill Top Nursery will then donate a real plant for sale on the stall.
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Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.