Thanks for taking the time to visit my JustGiving page.

Kian and I will be doing the color run in June to raise money. 

For those of you who don't know Asia was born with various rare birth defects classified as VACTERL association. She has 3 of these classifications affecting her heart (cardiac pfo/vsd) , renal function (hypo plastic kidneys) , and bowels (IA, impaction and fistula). At just 6 she has had over 25 operations - many of these before her third birthday, and currently has a permanent ACE in which a catheter along with medicine and 1.5 l of fluid must be passed through daily to maintain normal organ function (as well as oral meds) 

We've nearly lost her twice through internal poisoning through impaction. She has made me realise the true meaning of life and gratefulness in abundance! 

Asia is that bit of color in everyone's life. She has an energy so strong that you are fully aware of her presence before she even speaks. She never moans about her daily routine and tackles everything thrown at her with positivity, love and of course un repenting style. (Obviously , she has a separate "hospital" wardrobe darling) 

So this is for her . Her condition is so rare that there is no charity set up for VACTERL but Tofs include this condition in relation to others to help children living with it. 

If you would like to donate or run with me please do ❤️❤️