I will be completing a 5K run in April to support the EHE Rare Cancer Charity which is raising funds to help finance critical research into EHE, a very rare form of cancer. This cause is very close to my heart as my sister, Laura, has EHE. Living with EHE is very hard for patients, and their families, as so little is known about this form of cancer. Laura needs our help. We want to help her and others with EHE, by helping to fund that research. So please, if you can, sponsor us by donating on this page. No matter how small your donation it will be invaluable, and together with others will help save lives.   

And amazingly I will not be running on my own. My wonderful friends and colleagues at the Babraham Institute in Cambridge are joining me so that we can run and help as a group. I am so grateful for their support and compassion. It means so much to me and to my sister, and indeed to all the EHE patients we are in touch with. Together we can make a difference. So thank you everybody who is helping. You are all fantastic.

EHERCC is the UK’s newest cancer-focused charity. The charity has been active for six months, and it has just launched its “EHE Fundraising Month” campaign for this April, during which it will be raising funds for rare cancer research.  That is why we are doing our run.

The charity’s focus is Epithelioid Haemangioendothelioma (EHE), one of the rarest cancers in the world. It typically presents with multiple tumours at the same time. It has both an indolent (passive) and an aggressive form. Sadly, the indolent form will frequently become aggressive and therefore fatal. EHE targets women more than men, on a  ratio of approximately 4:1. It can present at any age but mostly appears in children, teenagers and young adults where it is often at its most aggressive. There is also a strong clinical signal that the onset of EHE may be connected to puberty in girls and pregnancy in young women, a characteristic of this disease which is particularly distressing.

Today, the oncology community have no effective treatments for this cancer, nor can they provide any form of reliable prognosis. And being so rare means that governments, the pharmaceutical industry, and even the big cancer charities, do not provide funding for research. That is why, at EHERCC, we are dedicated to raising the funds needed to carry forward the critical research required to understand EHE and provide answers to the many questions that exist for this cancer. You can find out more about EHE and the charity at

www.ehercc.org.uk