el ryan

Climbing Ben Nevis for Samuels Smile Charity page

Fundraising for Samuel's Smile
£350
raised of £150 target
Donations cannot currently be made to this page
Climbing Ben Nevis for Samuels Smile Charity, 18 July 2017
Samuel's Smile

Verified by JustGiving

RCN SC046209
We are for kids with RARE diseases to Give the children a chance to SMILE

Story

Samuel ( ricks cousins son) was born with a very rare condition called Total Intestinal Hirschsprung's Disease. He was given 3 months to live when he was born and is now 17 making him the oldest surviving person in the UK with this disease.

Because of this disease, he lives on an IV pump 18 hours a day 7 days a week which gives him total parenteral nutrition because he cannot eat. He's had over 60 surgeries and spent most of his life in Yorkhill Hospital, Glasgow.


A wee message from Samuel......
I never know what lies ahead for tomorrow but I live life to the full everyday and believe I am a miracle, that I'm here for a reason and I just want to make a difference.

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About the charity

Samuel's Smile

Verified by JustGiving

RCN SC046209
Samuel's Smile was set up by myself Samuel and I am 17, I have a RARE disease called Total Intestinal Hirschsprungs disease,there are only 3 kids in Scotland. My aim is for all the kids out there with RARE diseases to give them a chance to Smile together and also grant individual SMILES.

Donation summary

Total raised
£350.00
Online donations
£350.00
Offline donations
£0.00

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