Thanks for taking the time to visit my JustGiving page.

ASUK would like to Raise a Million for a Child in a Million to continue research into this devastating condition.

This will enable clinical trials, better treatments and management of this ultra rare condition, which leads to progressive blindness and deafness and may also lead to heart and kidney failure, type 2 diabetes, liver dysfunction, obesity and associated problems.

With Your Help, We Have Hope!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.