Story
Thanks for taking the time to visit my JustGiving page.
Our gorgeous son Ronnie has recently been diognosed with a vary rear genetic disorder called Hunters Syndrome also known as MPS ll. At the moment there is no cure for this but we hope in the future that will change. As you can only imagine we are all heartbroken. This page is purely for anybody who would like to donate to this wonderful charity which gives families support , helps fund vital Reasearch , and help those suffering . This charity will now be very personal and close to my heart. We will also be holding fundraisers to raise money and awareness in the near future.
Many thanks
All our love Chloe , Mike ,Laila and Ronnie x