Story
Thanks for taking the time to visit my JustGiving page.
This charity is very personal to me. Fragile X Syndrome is the most common cause of inherited intellectual disability and the most common genetic cause of autism and autism spectrum disorders, but before Harrison was diagnosed, I had never heard of it. The Fragile X Society gave me support and information at a difficult time allowing us to make informed, educated decisions to give Harrison the best possible future.
So, in order to raise some money for them and raise awareness for FXS I am going to ride my bike up Mont Vonteux in France. Those of you who know anything about my training will appreciate that anything over a 5 rep range is an endurance event for me, so dragging my arse to the top of Mont Vonteux is a big challenge. Any sponsorship will be greatly appreciated. But more important than that, take 5 minutes to read about Fragile X Syndrome and other learning disabilities.
‘'It must be difficult for my son when he so intensely sees, hears and feels everything around him. we all get overloaded at times - sometimes everything is overwhelming. just think, that's how it is for a child with fragile x syndrome - 24 hours a day''
#fragileXtraordinary