Clive Boothman

Chris's Event's Year

Fundraising for Alstrom Syndrome UK
£890
raised of £1,000 target
Donations cannot currently be made to this page
Edinburgh Marathon, 29 May 2017
Alstrom Syndrome UK

Verified by JustGiving

RCN 1071196

Story

Hello everyone. 

As some of you may know and for those who don't I will be attempting to do a minimum of 6 Tough Mudders this year & A Full 26.2 miles Marathon in Edinburgh. List below 

London West - Sunday 1st May
Midlands Half - Saturday 14th May
Midlands - 21st & 22nd May
Yorkshire - 6th & 7th August
South West - 21st & 22nd August
North West - 10th & 11th September
London South - 24th & 25th September

I'm not guaranteeing that I'm doing them. I'm aiming for a minimum of 6. But I'm going to give it a good go to complete as many as possible. 

Each Tough Mudder is a 12 mile and 25+ obstacle mud run. 

Also I am also going to be attempting to do a Full Marathon (26.2 Miles) on the 29 May in Edinburgh. 

I'm fundraising for a very well deserved cause Alström syndrome. 
 A few years ago, a very close friend of mine and his family lost their Son / Brother. He had a very rare genetic disease called Alström syndrome (See Link)  

 
It is a disease that effects the 
Vision
Hearing
Stature
Heart
Type 2 diabetes
Liver and kidneys
Plus much more. 

The charity was such an amazing help for the whole family. 
 
It's a charity that does not receive much funding due to the fact that not many people know about it, as its such a rare disease. 

So if you can give what ever you can it will be very much appreciated. Not only by me and the charity but also my friend's family who benefited from their help during a very tragic time in their lives. 
 
Thank you kindly.

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About the charity

Alstrom Syndrome UK

Verified by JustGiving

RCN 1071196
Alstrom Syndrome causes childhood blindness, hearing loss, heart failure, kidney failure, diabetes type two, obesity and many related health problems. Alstrom Syndrome UK (ASUK) is a small family run charity providing support and advice to families living with Alstrom Syndrome. We provide newsletters an annual family conference and quarterly clinic support.

Donation summary

Total raised
£890.00
+ £186.25 Gift Aid
Online donations
£890.00
Offline donations
£0.00

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