Story
Thanks for taking the time to visit my JustGiving page. Here we are again!
Following on from the successful 4 day trek along the Cotswold Way, we thought we'd do a similar thing for this year and walk the 90 mile Coast to Coast trail along Hadrian's Wall in 4 days!
This October would have been our daughter Abigail's 5th Birthday, so I wanted to mark what would have been a landmark year for her with a fundraising event for ROSY, the organisation that supported us during that far too brief time that Abigail was with us.
As some of you will know, Abigail was born with a condition called Edwards syndrome or Trisomy 18. This is a severely life limiting condition, most babies with this rarely make it through the first 24 hours as there are so many associated problems. Abigail was a fighter though and lived for 11 weeks and 2 days, eventually passing on New year's day 2008. For the first month of her life none of us left the hospital, but thanks to the help and support of George Hedges and the team at ROSY, we were able to spend the rest of the time we had at home with her.
ROSY - Respite nursing for Oxfordshire's Sick Youngsters is an organisation that raises an awareness of the need for respite nursing and funds to boost the extremely limited resources of the Oxfordshire's Children's Respite Nursing Team, who offer respite nursing to terminally, acutely or chronically ill children and babies in their homes. Their continued support is invaluable to families in similar situations to ours and provides that extra help and friendship that you need to cope with every day. Please look them up at www.rosy.org.uk