We are trying to raise money and awareness of nephrotic syndrome - there is little known about the disease. My son macsen was diagnosed with it November 2014. He has not been drug free since that time, has become steroid dependant and is taking immuno-suppressant drugs in the hope of weaning his body off the steroids. It's a tough drug regime! Some time after his initial diagnosis he was watching tv and came across a charity advertisement he asked if he could raise money to help find a cure for this disease so as to help others. He is such a kind boy and has been really positive through this difficult time. Please donate if you can

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