On the 11th of November 2009 our baby boy Lawrence Edward was born with problems with his lungs and was put on an incubator in kettering general hospital. they took an xray where they realised there was high pressure in the lungs which needed nitric oxide which they did not have so they got in contact with glenfield and arragged for them to take lawrence to their hospital. the next day a team came with a BABY TRANSPORT INCUBATOR and transfered him. my wife Victoria and i followed later in the car. glenfield has relative rooms which we stayed in . they took a chest ultrasound and they found another problem, there is a valve in the heart which lets the umbillical cord oxygenate the baby's blood while still in the womb which is supposed to close when the baby's lungs take over with his first breath. it did not close. That night lawrence took a turn for the worst and early in the morning he was put on an e.c.m.o. machine which does the work of the heart or lungs in Lawrence's case to try and let the drain in his lung do its job and bring the pressure down, meanwhile a drug called heperin was administered to thin his blood for the ecmo system but with the heperin there is a chance of bleeding on the brain, they took a muscle and skin biopsy and sent them to sheffield to be tested for metabolic problems. 4 days later he looked really bad and the nurse told us there was a good chance he would not make it through the night so we had him christened. He was a fighter and looked better the next morning. They decided that it was a good window to take him off the ecmo because the pressure had come down in his lungs due to the drain. He then looked really good on the outside and was more stable. He was on a dialysis machine to take any out of his body but his lactic acid was extremely high which indicated it being a metabolic problem. He was given a CT scan and this showed a small stroke which nobody could estimate the level of brain damage he would have. Lawrence was looking much better at this point often opening his eyes. This lasted a couple of days before the doctors started to notice less movement in his arms and legs so decided to do another CT scan which showed a severe bleed in the movement and sight part of the brain due to the high lactic acid and heparin. In the early hours of Tuesday 24th of November Lawrence passed away in the arms of my wife Victoria.

We had twelve priceless days with our Crowned Prince Of Innocence Lawrence Edward which we would not have had if it wasn't for the equipment and care of the staff in the P.I.C.U ward at Glenfield

we are determined to raise as much money as possible Please help if you can by donating. thankyou

 

Victoria & David

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