Story
Thanks for taking the time to visit this JustGiving page.
I have a rare type of congenital muscular dystrophy. There are less than 300 children in the world like me who have been diagnosed with this condition. Many children with this condition never walk and some, like me, struggle with stairs, running and balance. It is a progressive condition so as I get bigger then getting around will be harder.
There is currently no cure but there is hope. There are plans for a clinical trial of a new drug. The support you give will go to fund that research.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
Thank you for keeping my hope alive.
Dan xx