Andre Keidel

Edward's page

Fundraising for N.S.P.K.U.
£1,381
raised of £2,000 target
Donations cannot currently be made to this page
Event: Cardiff Half Marathon 2016, on 2 October 2016
N.S.P.K.U.

Verified by JustGiving

RCN 273670
We exist to help & support people with PKU to promote the care & treatment of PKU's.

Story

Thanks for taking the time to visit my JustGiving page.

On 2nd January 2016 Isla Marguerite Lakin was born.  During the heel prick test when she was a week old it was discovered that Isla had the rare condition of PKU.

Phenylketonuria (PKU) is a rare inherited condition in which there is a build up of phenylalanine in the body. Phenylalanine is a natural substance; it is a building block of protein. PKU is looked for in all newborns in the United Kingdom by measuring phenylalanine levels in the heel-prick blood test. All babies should have this test as it allows treatment to start early in life.

PKU is a treatable condition. Phenylalanine is found in the protein part of the food we eat. The treatment is a low protein diet. This means that high protein foods such as meat, cheese, poultry, eggs and milk are not permitted. Instead the diet is supplemented with artificial protein which contains no phenylalanine. This diet is very effective at lowering levels of phenylalanine and allows normal growth and development of the child.

Isla will have weekly blood tests to ensure that her levels are phenylalanine levels are at the correct level.  

I will be running the Cardiff Half Marathon for the NSPKU Charity and to raise awareness for this rare condition.  The aim is to complete the half marathon in less than 1 hour 40 minutes which is going to be a big ask giving where my fitness levels are at the moment!!  

Isla means the world to us and she is developing into a little star, but this would not be possible without the help and support of the NSPKU charity.  Although running the half marathon in this time is a big challenge for me, it is nothing compared to what Isla will have to do on a daily basis.

Any donations received would be greatly appreciated.  If i don't finish under the 1 hour 40 target, for every minute I will donate £50 (No pressure)

Many Thanks in advance for your support.


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About the charity

N.S.P.K.U.

Verified by JustGiving

RCN 273670
Exists to help & support people with PKU, their families & carers. It works closely with medical professionals in the UK. It receives no government funding & is dependent on the generosity of its members & the public to fund practical support, raising awareness & research into the condition.

Donation summary

Total raised
£1,380.44
+ £311.75 Gift Aid
Online donations
£1,380.44
Offline donations
£0.00

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