Mim is a lovely little girl with a very rare genetic condition (a GRIN1 gene mutation) that causes her global developmental delay, cortical visual impairment and very low muscle tone. At 3 years old she cannot sit or walk on her own, and she is getting too long and heavy for her parents to safely carry her upstairs. So they’re working to create a downstairs bedroom and wetroom for her, but this is a big challenge for them.

Mim really needs these adaptations to create the space to meet all her needs and make our home more accessible for her. The plan is to rip out the kitchen to turn it into Mim’s bedroom, and turn the utility room into a special wetroom for her, with a ceiling hoist running between the two rooms. They are also building a single-storey extension to fit a new wheelchair-accessible kitchen-diner, with a large back door and ramp for easily getting Mim into & out of the house. There are got great plans for installing sensory equipment and appropriate storage for all her physiotherapy equipment & medical supplies, and you can read more about the plans on her parents, blog ,http://www.perfectinweakness.co.uk/more-room-for-mim/.

The Council will help with the cost of these adaptations, but their grant covers less than half the total needed, and they simply cannot afford the difference. Her parents are doing everything they can including applying to charities & trusts, but they still need lots of help. Please sponsor me as I run the 22 (ish) mile Four Passes race over rough terrain in the Lake District on October 15.