Thanks for taking the time to visit my Just Giving Page every penny is appreciated.

For those that don't know Evan was born with Type 3 Oi, Brittle Bones for short. This means that before he was 3 months old he had already had up to 30 broken bones and this will be throughout his whole life.

I really want to raise more awareness of this condition that affects so many children. When we were first told about it we knew nothing about it and neither did most people at the hospital and this is what I want to change!

This little man is my inspiration and what makes me want to do something about it. So if you have some change to spare please put it towards a good cause and support me and my friends who are running this gruelling challenge and more research into Brittle Bones and treaments!!

Please see below for our story:

Evan was born 3rd June 2015 we knew there was something wrong from our 20 week scan. We were rushed into fetal medicine to check our babies bones. To know something is wrong with your baby is utterly heart breaking and i wouldnt wish it on anyone. That's the first time I had ever heard of osteogenesis imperfecta  (brittle bones) they told us It was a possibility and we would have to have an amneosentesis to rule it out. I was reluctant to have the amneo but the consultant persuaded me to have it. Her words were "would you want your baby to be born with severe osteogenesis imperfecta a condition In which they live in excruciating pain from there bones breaking" The feeling of thinking your babies bones are breaking inside you,  the place they are surpose to be safest is earth shattering I was heart broken. I'm a nurse and now a mum I don't want to see anyone suffer.  2 weeks of waiting for results were utterly devastating. We were told that he didn't have it and I was soo realeaved but turns out they actually never tested for it like they said they were (that's another story). Evan was born 3rd June 2015 as soon as he was born I knew. I had spent 8 weeks off work sick with stress googling severe osteogenesis imperfecta every minute of every hour of every day. I had read and looked at everything from the brittle bone website to Google images to scholar articles. I watched little couple on tlc to see what it was like and how they lived happily with a form of dwarfism. Eventually one day I was watching jeremy kyle and they had a special on extraordinary children so I watched it as I knew that my child was going to be born different what at that point I was unsure. There was a little girl on there with severe brittle bones she looks soo happy and was utterly gorgeous she  had suffered soo many breaks but was soo lovely. This is the first and only time I had seen anything positive about brittle bones. my decision at the time of my amneo was I will love this child regardless if they are going to die I will be there to hold them until they pass or if they were going to survive I would love them extra hard. But severe brittle bone the way it was explained to me and explained online is cruel. No child should be born to suffer in excruciating pain I wouldn't do that to my child ( that decision was taken away from us as they never tested for it that again another story) but I  believe things happen for a reason and from the information I received i probably would of made the wrong decision. Evan is the most wonderful lovely gorgeous baby I have ever seen. He has a lovely tempermant and has soo much courage more than anyone 80 times his age. When Evan was born nearly every single bone in his body was broken he laid dormant hands in the air legs red and swollen. They only thing that moved were his eyes yet although he was in all that pain with only paracetamol as pain relief he was still calm. Having Evan has been challenging and also rewarding from the moment he was born we have been scared to touch him carrying him around on a pillow. I can't even explain how heart breaking it is not to be able to hug or touch your child without fear of causing such pain. This year has been tough to say the least. Since Evan was born I have found support groups who have opened there hearts to us fully one other mum even sent me a flat car seat that attaches to wheels so I wouldn't b scared to go out with Evan and feel isolated she did not want want a single penny and even paid for it to be delivered for that I'm truly greatful. Speaking to these mums and seeing there kids grow gives me much more hope for the future than I have ever had before. If you Google severe type 3 oi it can be utterly sad and can leave you numb reading all the problems they face but to see children and adults leading as normal a life as possible and happy too. They don't tell you this at the hospital they just tell you facts about hearing loss, mobility problems, pain and to send us home from hospital all We had was a sheet of paper and told minimal handling. Anyways that's my story soo far thanks to drugs like pamidronate to strengthen bones the outlook is better now than has been before. We still don't know if Evan will be able to stand, swim, crawl etc but we will find out one day at a time. What I do know is that Evan is an amazing very very loved little boy and this year has soo far been the worst year of my life. I watch one born every minute and you are surposed to be elated with happiness when they hand you your baby not sadness. For me it was sadness as I was unaware of the things Evan can and will achieve. All I had when I looked at my baby was Google in my head a list of problems that he will encounter in his life. So 1 let's raise awareness so the next poor lady that gets told her baby may have Osteogenesis imperfecta doesn't have the same feeling I did when they handed me my son. 2 let's raise some money for the brittle bone society for the amazing support they give to families like mine and the research for new things such as medication and equipment  and support that makes it abit more easy to live with brittle bone disease. Something good must come out of this horrible year and gives me and James something positive to look at when we are sitting in hospital rooms or trying to calm our poor little  baby Evan which also means  young warrior and he most certainly is.

Thank you for taking your time to read our story and raise awareness!

For Evan's Sake will be running Tough Mudder on 1st May 2016 to raise money!!