Story
Duchenne UK is a charity that is very close to my heart. Our family friend Karl Kuhwald passed away last year after battling cancer. As well as being an unforgettable friend, Karl was a much loved and dedicated husband to Lisa, and a wonderful father to Oscar, Casper and twins Felix and Herbie.
In 2013, 3 year old Felix was diagnosed with Duchenne
Muscular Dystrophy (DMD). DMD is a devastating muscle-wasting condition that predominantly affects young boys. Most of whom will struggle with mobility by age 8 and become wheelchair bound between the ages of 10 and 14.
DMD is a life limiting condition and most boys will only
live into their twenties, suffering from heart or respiratory failure.
Medical advancements are being made all the time though and new treatments are on the horizon. Felix and other boys like him are still young enough to benefit from these new drugs and therapies, but time is running out.
London Stone will be holding a number of events throughout
the year to support this amazing charity but we decided to kick off with a real challenge.