H BOARDMAN-WESTON
Harry's heroes raising awareness for Batten disease
Fundraising for Batten Disease Family Association
Story
Hi all,
Thank you for looking at my page.
This has been set up to help raise awareness and fund research into a rare metabolic disease known as batten disease.
This is what Harry has been diagnosed with.
Harry wants to do lots of fun things to raise money to help find a cure for this horrible disease and the first was getting mummy wet.
Be a Harry's hero today and if your not able to donate just tell somebody else that this exists and tell them to somebody and the message will soon get out there.
Any suggestions or volunteers for fundraising would be great fully welcomed
Love from
Graham, Laura, Joshua and Harry x
Thank you for looking at my page.
This has been set up to help raise awareness and fund research into a rare metabolic disease known as batten disease.
This is what Harry has been diagnosed with.
Harry wants to do lots of fun things to raise money to help find a cure for this horrible disease and the first was getting mummy wet.
Be a Harry's hero today and if your not able to donate just tell somebody else that this exists and tell them to somebody and the message will soon get out there.
Any suggestions or volunteers for fundraising would be great fully welcomed
Love from
Graham, Laura, Joshua and Harry x