joanne atkins

Helen's Donate A Dinner

Fundraising for St Mark's Hospital Foundation
£18,036
raised of £17,500 target
Donations cannot currently be made to this page
Donate a Dinner, 20 May 2017
We fund vital research and education to fight for a future free of bowel disease

Story

Welcome to DONATE A DINNER

What’s it all about?

I have Intestinal failure, Gastroparesis, Visceral Myopathy & POTS. All were diagnosed following failed back surgery. 

I am a patient of consultant gastroenterologist Dr Simon Gabe at St Marks Hospital Harrow. 

Without his expertise and care my conditions would have continued to go undiagnosed and both myself along with my family, truly believe as a result I would not be here today!

So, here’s a TINY TASTER to enable you to try to understand the pain and suffering I endure on a daily basis, I need you to do the following.

Imagine you are starving! 

Now Imagine having conditions which mean you are unable to process food.

Food and fluids cause severe abdominal pain and bloating, nausea and in severe cases such as mine vomiting. 

This leads to malnutrition and dehydration along with exhaustion. 

In severe cases you are fed as I am artificially via a jejenostomy tube into the small bowel to bypass the stomach or by TPN, this is when a sterile feed is given directly into the veins just next to the heart. The feed is pumped into your body over the course of 13.5 hours. 

This is the only way you can SURVIVE.

When these options have been exhausted another source of treatment is a multivisceral transplant.

There are no cures for these conditions. Gastroparesis effects 1 in 50,000 of the population and Visceral Myopathy is a very rare condition indeed. Research in this area is very difficult as it is often diagnosed at a very late stage or missed.

These conditions seriously affect your quality of life and the lives of your loved ones...

PLEASE HELP TO RAISE AWARENESS BY SHARING THIS INFORMATION & BY DONATING THE COST OF 1 DINNER, LUNCH OR  A DRINK!

HELP RAISE VITAL FUNDS FOR RESEARCH FOR PEOPLE SUFFERING FROM BOWEL CANCER, CROHN'S & All TYPES OF INTESTINAL FAILURE.

HELP TO BEAT BOWEL DISEASE & SAVE LIVES!

MAKE A DIFFERANCE.


 



Share this story

Help joanne atkins

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

We support innovative medical research & education at St. Mark’s Hospital in Harrow, the world's first specialist bowel hospital In its 180th year, the hospital remains a world-centre of excellence. Our vision is of a future free from the fear of bowel disease and a future free from bowel disease

Donation summary

Total raised
£18,035.94
+ £3,278.60 Gift Aid
Online donations
£16,945.94
Offline donations
£1,090.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.