Story
Welcome to DONATE A DINNER
What’s it all about?
I have Intestinal failure, Gastroparesis, Visceral Myopathy & POTS. All were diagnosed following failed back surgery.
I am a patient of consultant gastroenterologist Dr Simon Gabe at St Marks Hospital Harrow.
Without his expertise and care my conditions would have continued to go undiagnosed and both myself along with my family, truly believe as a result I would not be here today!
So, here’s a TINY TASTER to enable you to try to understand the pain and suffering I endure on a daily basis, I need you to do the following.
Imagine you are starving!
Now Imagine having conditions which mean you are unable to process food.
Food and fluids cause severe abdominal pain and bloating, nausea and in severe cases such as mine vomiting.
This leads to malnutrition and dehydration along with exhaustion.
In severe cases you are fed as I am artificially via a jejenostomy tube into the small bowel to bypass the stomach or by TPN, this is when a sterile feed is given directly into the veins just next to the heart. The feed is pumped into your body over the course of 13.5 hours.
This is the only way you can SURVIVE.
When these options have been exhausted another source of treatment is a multivisceral transplant.
There are no cures for these conditions. Gastroparesis effects 1 in 50,000 of the population and Visceral Myopathy is a very rare condition indeed. Research in this area is very difficult as it is often diagnosed at a very late stage or missed.
These conditions seriously affect your quality of life and the lives of your loved ones...
PLEASE HELP TO RAISE AWARENESS BY SHARING THIS INFORMATION & BY DONATING THE COST OF 1 DINNER, LUNCH OR A DRINK!
HELP RAISE VITAL FUNDS FOR RESEARCH FOR PEOPLE SUFFERING FROM BOWEL CANCER, CROHN'S & All TYPES OF INTESTINAL FAILURE.
HELP TO BEAT BOWEL DISEASE & SAVE LIVES!
MAKE A DIFFERANCE.