Sumedha Payagala

Andrew's GigerMD machine

Fundraising for Multiple System Atrophy Trust
£26,032
raised of £25,000 target
Donations cannot currently be made to this page
GigerMD machine, 30 June 2017
Multiple System Atrophy Trust

Verified by JustGiving

RCN 1137652
We support families affected by MSA to increase knowledge of this awful disease

Story

"For the price of a decent planning report or a bit of due diligence, we can make a real difference to the lives of people who, up until now, have only been told there’s nothing that can be done for them."

I am asking for your help to raise £25,000 that being the cost of buying, importing and installing a GigerMD in the UK and training staff to operate it. You don’t have to promise all of that yourself of course, but anything, anything at all that you can give would make a tremendous difference not only to me, but to anybody who has a neurological condition of any sort. And that’s an awful lot of people who would be immensely grateful to you.

I have developed a rare medical condition known as MSA - a neurodegenerative disease that medical science can’t yet cure, treat or even slow down. Basically, MSA just munches away at one’s nervous system until there is nothing left to munch. At which point, you lose. I have had symptoms for several years but have now reached the point where working is no longer feasible.

While medical science can't cure MSA, the GigerMD machine helps the
body to reassign healthy nerve tissue to replace tissues damaged or destroyed by accident or disease. It’s not a cure, because eventually the body runs out of healthy nerve tissue to convert, but it is a way of making the very best use of what one has. Stoke Mandeville Hospital have one of the only machines in the public domain in the UK, and their Clinical Director recently wrote to me to say: “we find the GIGER to be an extremely useful part of the ongoing maintenance for health for people with neurological disability.”

I mentioned the GigerMD to Benfleet Physiotherapy, the neuro-physiotherapy practice that I attend and they, having consulted with numerous senior practitioners, were very enthusiastic about the device. So much so they agreed that if we could raise the money to buy one, they would locate it within their practice and not only offer therapy to MSA sufferers free of charge, but also provide rehabilitation services to anyone suffering with a neurological condition.

Quite apart from the treatment angle, there is also the possibility that the data obtained from treatment would have a value in MSA research, an area that needs much more support.

This is probably the most cost effective project I’ve ever been involved with. For the price of a decent planning report or a bit of due diligence, we can make a real difference to the lives of people who, up until now, have only been told there’s nothing that can be done for them. That’s got be worthwhile.

Thank you.
Andrew

Share this story

Help Sumedha Payagala

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Multiple System Atrophy Trust

Verified by JustGiving

RCN 1137652
The Multiple System Atrophy Trust is the only UK charity dedicated to providing specialist support to all those affected by MSA; a life-limiting neurodegenerative brain disease. We provide MSA nurses, a telephone helpline and regional support groups. We also fund research into both a cause and cure.

Donation summary

Total raised
£26,032.00
+ £1,126.75 Gift Aid
Online donations
£14,567.00
Offline donations
£11,465.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.