Thanks for taking the time to visit my JustGiving page.

This charity needs a much money as possible to be able to research this rare condition. As our daughter has this condition, it's even more important to us to help raise money. However small the donation, every penny counts! 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.