Thanks for taking the time to visit my JustGiving page.

Alport Syndrome is a rare renal genetic disease that affects my family. It causes end stage renal failure and requires dialysis and transplant as the only long term treatments. As a mum of a young child facing this future I am truly grateful for you taking time to visit this page. 

Drug therapies are improving to delay renal failure but as it is so rare we need to keep raising funds to support research. We are incredibly grateful for any support you can offer and as a 'young' charity will take great care to invest all funds to work towards inproving the lives of familes affected by Alport Syndrome. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

Many thanks

Julie