I'm the father of a lovely 6-year-old girl with Angelman Syndrome, a true everyday hero. She has been consistently fighting her condition since she was born with an engaging smile in her face. Making progress thanks to her hardworking determination, and the love of her family, teachers, doctors and friends.

I'm sure you have not heard about this uncommon syndrome. Angelman Syndrome is a rare and severe neuro-genetic disorder. Characteristics of this disorder include developmental delay, lack of speech, seizures, motor coordination and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.

I would appreciate your help and contribution to this amazing organisation, ASSERT, which supports these children and their families.