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Thanks for taking the time to visit my JustGiving page.
I hope you will follow me & support me again as I raise money for another very worthy cause which is very close to me. Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. All of my uncles on my mother’s side have died as a result of Huntington’s disease. There is also others in my family who are also suffering as a result of the disease.
Huntington's disease is an incurable, hereditary brain disorder. It is a devastating brain disorder for which there is no currently 'effective' treatment. Nerve cells become damaged, causing various parts of the brain to deteriorate. The disease affects movement, behavior and cognition - the affected individuals' abilities to walk, think, reason and talk are gradually eroded to such a point that they eventually become entirely reliant on other people for their care. Huntington's disease has a major emotional, mental, social and economic impact on the lives of patients, as well as their families.
Signs and symptoms can appear at any age, but most commonly do so between the ages of 35 and 55 years. They will progressively worsen for ten to twenty years untilthe patient ultimately dies.
It used to be called Huntington's Chorea, because the involuntary movements made by patients with the disease can appear to be like jerky dancing -"chorea" comes from the Greek word choreia meaning"dancing". The English word "choreography" also comes from the Greek word choreia.
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