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Thanks for taking the time to visit my JustGiving page.
We are holding a Sturge Weber Charity Ball at Goodison Park, 'The Peoples Suite' on Saturday 7th June 7pm - 1am, tickets cost £25 each and there will be a hot buffet, live entertainment, comedian, and a DJ, plus raffles & lots of fun.
I want to raise awareness of this Rare Neurological Condition, you can read about the condition by clicking on link.
My 6 year old granddaughter has this condition and she is one of the most remarkable little people I know, she has taught me so much over the years, she inspires me and shows me that anything is possable by just watching how she manages daily life, she takes everything in her stride.
If I can raise enough money I have agreed to get my hair shaved of on the night of the ball, on stage in front of everyone.
If you wish to join us on the night, please contact me to buy a ticket and join in the fun.
Dress code is very smart.
Looking forward to seeing you all there.
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