Dwynwen Hughes

Joshua's Heart

Fundraising for Evelina Children's Heart Organisation
£4,556
raised of £5,000 target
Donations cannot currently be made to this page
In memory of Joshua Edward Hall (Joshy Bear)
We support heart families from the Evelina to help at times of crisis pre birth-18

Story

My little joshy was an incredible little warrior who sadly passed away at 11 weeks old after complication with his heart. We have been fundraising since in his honour. 

 Joshua was diagnosed with a rare heart condition at his 21 week scan, Hypoplastic Left Heart Syndrome. Hlhs is where the left side of the heart does not develope. You are given three options 1. Abortion 2. Palliative care 3. Three open heart operations from birth to 3-4years old  and possible transplant at any age! Many do not live to see there first birthdays. 

Echo are a wonderful charity who provide support to children and their families with heart conditions at the Evelina. They have supported us for the last 7 years even after Joshy died and we will continue to support them in his honour! 



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About the charity

ECHO supports children with Congenital Heart Disease who are treated at the Evelina Children's Hospital and their parents/carers. We provide information, friendship and support at times when parents feel alone and desperate, or when they need guidance or advice. We also support the children themselves as they grow into their teenage years and beyond, to help them take the first steps towards independence in dealing with their heart condition.

Donation summary

Total raised
£4,555.40
+ £823.99 Gift Aid
Online donations
£4,365.40
Offline donations
£190.00

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