Eleanor Simmons

Julien's page

Fundraising for Angelman Syndrome Support Education & Research Trust
£6,611
raised of £4,500 target
Donations cannot currently be made to this page
Event: Vitality British 10k London Run 2016, on 10 July 2017
We help and support UK families to find the best in Angelman Syndrome.

Story

Hi all,

Well, 3 years ago we discovered that Calixte had Angelman syndrome. ASSERT and all the great work they are doing have been so helpful since then, so time to try and help raise awareness and support. Starting small with the London Vitality 10k, but like Calixte, step by step we'll get there. My goal is to finish below 60 minutes, which is more ambitious than it might sound 😁 

All your support is greatly appreciated,

See you soon,

J


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About the charity

Assert is a United Kingdom based support group for those affected by the rare genetic condition Angelman Syndome (AS). A diagnosis of AS will have life changing consequences and we are there to help families cope. We also advise medical and care professionals dealing with this rare condition.

Donation summary

Total raised
£6,610.89
+ £687.50 Gift Aid
Online donations
£6,610.89
Offline donations
£0.00

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