When I was 8 months old, I was poorly for a week with flu like symptoms and generally off and grumpy with small bruising. My wonderful Doctor knew something was seriously wrong with me, he referred me to RHSC on Friday 13th September 2013 and within 3 hours of arriving I was diagnosed with Leukemia - Infant A.L.L.
I spent 5 days in ICU where they stabilised me and was then transferred to Ward 2 where I have been since. On the 5th of April 2014 it is 29 weeks since I was admitted and spent a total of 9 days out of hospital in that time, I am constantly in isolation to protect me from bugs and keep me safe so I don't get a chance to play or mix but the nurses and doctors are my friends.
I have a big battle on my hands fighting for my life as I was and am little and have had a lot of complications. The Protocol of Chemotherapy I am on is very intense as the Leukemia is very aggressive in babies.
My treatment has encountered a rare twist, the Leukemia managed to get into my left eye, this is very very rare. There was no protocol for this and nothing to refer too. Therefore to guarantee me the best chance of survival to to help eradicate the Leukemia my left eye was removed on Monday 17th February 2014. I continue to battle Leukemia every day and have monthly battles with Mr Chemo who makes me poorly. When Mr Chemo comes to stay he makes me very poorly but I battle through and always have a smile, a kiss and a dance for whoever passes my window.
I am 15 months old now and I fight every day without knowing it as I think this is normal and hospital is my home. I hope that by doing this my journey is not in vain and if I can raise awareness and help 1 family I have achieved my goal.
When I was 27 months old on the 13/03/15 I relapsed. The Leukaemia had returned consuming over 50% of my bone marrow the odds were stalked against me and we were told to stop treatment. However my parents could and would not consider this and I fought, I surprised everyone so i went to Glasgow on 24/06/15 for a Stem Cell Transplant. I have done amazing and I was discharged from the ward to the hotel in Glasgow on the 24/08/15.
It has been hard but things are looking positive so far but we take each day at a time And started to relax and enjoy the simple things in life 💛
I am grateful for all the love, support and help my family and I receive from family, friends and strangers.
If you would like to follow me on Facebook please add me; Kai.laidlaw@Facebook.com
I am raising vital funds to help a charity that is close to my heart. My parents supported this cause before I was diagnosed and they offer love, support and advice 24 hours/7 days a week. X
This year CCLASP celebrate their 20th Anniversary. Since they began 20 years ago they have helped approx 500 families a year that equates to 10,000 families ! They hope to achieve even more in the next 20 years by moving with the Sick Kids Hospital to the New Royal Infirmary, they are securing land and hope to create a purpose built building to offer support right on the doorstep. They think this could cost in the region of £2 million, YES 2 million and they need to run CCLASP each year too. They need your help to make this possible. What will you do to help us celebrate their 20 year anniversary???? X
Everything little thing helps! X x