Thanks for taking the time to visit my JustGiving page. Donating through JustGiving is simple, fast and totally secure. 

6 years ago my family's life was shattered with devastating news that my brother in law had this rare genetic disease! With my husband presenting  with similar symptoms he was also tested and unfortunately he was also diagnosed with the same disease Myotonic Dystrophy type 1 the worst type!

My husband 's symptoms have progressed rapidly since his diagnosis, with him now having to wear splints to aid his walking, people thinking he's drunk as sometimes he slurs when he talks. The latest and most devastating symptom is he is now in respiratory failure due to his diaphragm and chest wall not working effectively, which causes difficulty with his breathing, walking and even tying his shoes! From being a top sports person playing hockey and tennis at county level, to struggling walking has been hard for all of us especially my husband.

This disease can affect any muscle in your body causing muscle stiffness and weakness, from the inability to smile pro[perly , not swallowing effectively to your lungs and heart being effected due to the weakness of the muscles. There is no treatment or cure for this disease!

Please sponsor the team even if it's a £1, so more research can be done and hopefully treatments can be found. X