Thanks for taking the time to visit my JustGiving page. PLEASE READ MY STORY, it takes a few minuites of your life and means the world to myself, my children and Families with sick children due to FH.

I am a patient ambassador for HEART UK, the UK's ONLY dedicated Cholesterol charity. I am raising funds for them to help with funding research into the inherited genetic condition FH (Familial Hypercholesterolaemia) and after a long, frustrating and emotionally draining fight to get them tested we found out my son Lewis and daughter Isabel have too (aged 11 and 8 on diagnosis) My oldest son Jack seems to be clear but I am still fighting to get my little boy Caleb tested.

FH causes permanently high cholesterol levels which clog up the arteries and heart leading to premature Heart disease, strokes and death.

My children and I have heterozygous FH, where we have one bad gene, so we can be treated with medication and lifestyle choices- which aren't easy, but we are getting there! (You try telling kids they cant have cupcakes and burgers like all their friends lol)

Families with Homozygous FH where they have two bad genes are not so easily treated, sometimes medication is not enough and they need apherisis (dialysis) and become seriouisly ill with a much reduced life expectancy- hence the need to raise funds for new treatments!

 

Rhianna Wingett was just 11 when she died due to being refused testing even though her Mother was diagnosed with FH.

The treatment for people in the UK with FH is still patchy at best with many going without proper diagnosis, treatment and care leading to many people having serious cardiac events, heart attacks, strokes and unfortunately some don't make it, both adults and children. Those of you that know me well know I have a big mouth and I am putting it to good use raising awareness of this illness and trying to instigate change!

Please read the links below which highlight so poigniantly why FH needs highlighting, people and doctors need educating and families with FH NEED to get diagnosed and treated.

As an ambassador I am constantly up to something trying to raise awareness of FH, get families tested, diagnosed and treated to prevent deaths and to raise the standard of care given to FH families, details of what we are doing are in my updates on this page. PLEASE donate if you can, its not a well known disease and receives little support because of this. It is LITERALLY a silent kiler, I will not accept my children or anyone elses children, fathers, mothers, sisters and family menbers to be lost to this illness as it is so unnecesary and Hetero FH is comparatively easy to treat compared to some diseases. Homo FH desperately needs funding to support these families with a horrendous life threatening illness and fund new trewtments that WILL SAVE LIVES.

HEART UK is the ONLY dedicated Cholesterol charity supporting families with inherited genetic cholesterol diseases. YOU can make a real difference with even a small amount of money.

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Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

 

Thank you 

Kate, Lewis, Isabel, HEART UK and all FH Families

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