This is a page dedicated to our son Ethan Otis Thornton who passed away on December 24th 2012 at age 2 1/2. He was a special boy diagnosed early on with a rare genetic condition known as Ponto Cerebellar Hypoplasia- PCH. While there are 6 types of PCH there is very little known about the condition and has affected many children wordwide. Our goal is to raise money for the Joshua Deeth Foundation which supports research and aid to families coping with the lack information about this condition. 

Please note that this is a UK based foundation, but the support is worldwide. Please use the currency changer at top of page to select your donation currency of choice.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. 

Please make a donation on Ethan's behalf to support their continued efforts. Thank you for your support and love for Ethan.

The Thornton Family.