Tuberous sclerosis (TSC) is a rare genetic condition that affects about 1 in 6000 newborn babies. It has a variety of side effects but is little known about.
TSA is a charity in the UK that does a lot of good work to help support the sufferers of the disease and those who care for them, ranging from counselling to research.
Unfortunately Luisa's godson Jack has just been diagnosed
with the condition and we'd like to do what we can to help and raise
awareness.
On 21st May, we will be running a gruesome marathon along the
Great Wall of China, battling the steps, the heat, the humidity and of course the dreaded smog! Please spur us along by donating generously to this great cause... We need all the help we can get!
You can find out more information about the charity and condition here:
http://www.tuberous-sclerosis.org/
Love Luisa & Leon