Macee was born in June 2012 and was diagnosed with Cockayne Syndrome in August 2013.  She has a wonderful smile that lights up the room!

 

Macee attended a conference organised by Amy and Friends and the support they give to children and families is overwhelming.

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Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.