Story
Thanks for taking the time to visit my JustGiving page.
Logan was born in 2013, with a number of different medical issues, but no diagnosis of what was causing them. It took 11 months for us to be finally told Logan had NF1-Noonans.
At 4 months old Cafe-au-lait patches started to appear all over his body, finally giving the genetics team an idea of what could be wrong.
NF1 affects each child differently, Logan has a complex form of this genetic condition affecting his heart, kidneys, bladder, muscles, seizures. Tumors are already growing along his nervous system. Hes globally delayed, cannot yet speak and has difficulty eating.
Our hope in this generation is to find some way to stop the tumors growing through theses kids bodies! Please help us raise awareness and support for everyone affected by this x