Story
Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood. It is a severe, progressive muscle-wasting disease that almost exclusively affects boys.
Duchenne causes muscle deterioration in pre-teens, early-teens to be wheelchair bound, the heart and lungs begin to fail in late teens, and it has a 100% mortality rate. Duchenne affects 1 in 3,500 boys and whilst it can be genetic, 1/3 of cases are caused by a spontaneous genetic mutation.
10 years ago our friend's son was diagnosed with Duchenne. He is now 14 and wheelchair bound. His parents, Doron and Kerry, founded the Duchenne Research Fund (http://www.duchenne.org.uk/) to find a cure for this dreadful disease.
Fast forward and projects funded by the Duchenne Research Fund (http://www.duchenne.org.uk/our-projects/) have made incredible steps towards reaching this goal. It really is looking like a cure can be found. Please help me help the Duchenne Research Fund find a cure for Duchenne muscular dystrophy.
Thank you
Naomi xx