Moore Concrete
Neil's 10k Farmageddon Run page
Fundraising for Our Brave Knight
Story
Having been roped into the run, I thought it best to make the most of the opportunity and raise some money for a local charity Our Brave Knight.
Our Brave Knight is a charity that has been set up to fund as much research as possible for XIAP(X-Linked Inhibitor of Apotosis) Deficiency. This is a very rare genetic disorder that only affects boys. Having this genetic disorder means your immune system doesn’t work properly and the only known cure is a Bone Marrow Transplant, which is a risky procedure anyway made worse if you’re a XIAP patient.
XIAP Deficiency was only discovered as its own unique disorder in 2006, so there is still not enough known about it to save every boy that has it. Visit www.ourbraveknight.co.uk for more details.
Please donate to my run and raise as much as we can for a worthwhile charity.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.
Our Brave Knight is a charity that has been set up to fund as much research as possible for XIAP(X-Linked Inhibitor of Apotosis) Deficiency. This is a very rare genetic disorder that only affects boys. Having this genetic disorder means your immune system doesn’t work properly and the only known cure is a Bone Marrow Transplant, which is a risky procedure anyway made worse if you’re a XIAP patient.
XIAP Deficiency was only discovered as its own unique disorder in 2006, so there is still not enough known about it to save every boy that has it. Visit www.ourbraveknight.co.uk for more details.
Please donate to my run and raise as much as we can for a worthwhile charity.
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.