Please see below for a brief overview of our fundraising events and how you can support us! Along with "Oskar's Story" in full (gallery photos).

When Oskar was 9 months old, he was diagnosed with Aromatic Amino Acid Decarboxylase Deficiency (AADC). He is one of approximately 100 children worldwide with this disease; some of them have already lost the battle. 

AADC is a very rare metabolic neurotransmitter disease which prevents the production of the chemicals Dopamine and Seratonin, two of the brains main neurotransmitters needed for everyday life. This leads to some serious handicaps and an overall feeling of unease and sickness. 

Unlike a lot of other AADC-children, Oskar responds well to medication and he is one of the rare children with AADC who can walk!   

Right now, we are raising money for a gene therapy trial, which is a magnificent scientific breakthrough and will give all AADC sufferers the chance to have a better quality of life. This procedure will replace the missing gene responsible for this debilitating condition. 

We – the family and friends of Oskar - appeal to your generous support to help us give these unique and lovely children a chance to a better life!

We are raising money through small events such as a poetry evening, and gaining sponsorship. We are aiming to increase awareness through our own awareness campaign. However, our main event is "An Evening with Oskar" on 18th April 2015, which will be a special evening including live music, an auction and a party, all in aid of The AADC Research Trust. You will be able to buy tickets for this special evening for €20 each or €10 for entrance after 22:00 hrs.

All money raised will go to The AADC Research Trust.

Thank you!