well Tenby was amazing, its taken me a few days to recover. 2.4 miles of open water competative swimming but the man did good :-) raised awareness by Katie leaping on the woman with the microphone to announce it and by wearing the fms awareness t shirts ;lol. 

so proud of the effort Mr H put into it and the time he did for his first organised swim, London in aug should be a breeze :-)

 

 

 

 

A quick thankyou to all that have donated, every penny will help and hopefully by giving and talking about it, it will also raise awareness :-)

Thanks to Rachel from mygarmentfactorycardiff.com for help in organising the sweatshirts and for the donation, bright yellow sweatshirts no one can miss! ;) 

Tenby this Friday for Peter to do his first timed open water swim, a bit nervous but I think that's mainly because of my driving not the actual swim lol

Once again, thanks to everyone who is supporting him in every way. Axxx

 

Hi

The challenge is to raise awareness for a chronic pain condition known as FMS/FM. (A chronic disorder characterized by widespread musculoskeletal pain, chronic fatigue, sleep disorders, cognitive memory impairments, communication problems, sensitive to odours, noise, bright lights, foods, medication, TMJ, dizziness, Numbness, Muscle spasms, RLS and tenderness in localized areas).

My Wife Ann was diagnosed with FMS in 1999 after several years of being told that there was nothing wrong and being sent for many different tests.

Some of them quite scary if the results had come back as a positive. But in the end it was picked up by her rheumatologist as FMS (FM to some).  Ann has battled on each day and continued to raise our family. For some they let the illness take over their lives and become house bound, never knowing that others have the same chronic condition. Ann Suffered for some 10 years with a prolonged case of agoraphobia due to the fatigue and chronic pain brought on by the illness. With help from CBT (Cognitive behavioural therapy) she battled and won that fight.  No one knew and unlike some illness you never see pain or what goes on behind that in the mind,

To know that your best friend, lover, wife is suffering and there is nothing that you can do to make it better is hard.

You watch them suffer each day and having the odd day when it’s not too bad, then see them slowly change.

There is not a cure for FMS. There is not that much that doctors can do. Most of it is through your own personality and determination, not to let it get the better of you and finding help and support. Finding something to smile at each day, and knowing that out there, there are others like you and they are going through the same feelings.  So I want to raise awareness promote and support FMS http://www.fmauk.org/ this site is just the starting point of a journey and there is lots of local help as well. FMS suffering is hard when no one see’s your pain. You are not alone.   Please help me to help others who might not yet know that people do care and that there is a lot of advice now on how to manage the illness. All be it that you will still get strange looks when you say that you have FMS.

I care so please help.  

Thanks

Peter

Thanks for taking the time to visit my JustGiving page.

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Hi 

This is a mini blog/diary I am adding to Peters ( my husband) blog to show his progress and training for the London swim. 

Today we are going out to find an open water place he can try out his new wetsuit :-) I am the driver, he is the swimmer and we will keep it like that LOL I am so proud of him for choosing to raise money for FMS which will fund research into maybe one day finding the answers. He has taken on this challenge with gusto! He does a 2 1/2K swim every day before work, after giving up smoking last year he has changed his fitness regime totally, Jess ( our dog) has done miles in the last few week :-) so overall he is getting ready for the London swim as well as the other Great North Swims next year. We will be going to Tenby in a fortnight to do his 1st competitive open water swim so wish him luck!