On April 24th our family is going to complete a 5k walk in support of the EHE Rare Cancer Charity (EHERCC.org.uk). Our goal is to increase awareness of EHE (epithelioid haemangioendothelioma) and to help raise as much money as we can to help fund critical research. It is a project dear to our hearts as our daughter Penny was diagnosed with EHE 12 years ago.

EHERCC is the UK’s newest cancer focused charity and has only been active for 6 months. We have just launched April 2016 as our fundraising month.

EHE is one of the rarest cancers in the world. It typically presents with multiple tumours in different sites at the same time, most commonly in the lungs and liver. It has both an indolent (passive) and an aggressive form. EHE targets women more than men. It can present at any age, but mostly appears in children and young adults. There is also a strong clinical signal that the onset of EHE may be connected to puberty in girls and pregnancy in young women, a characteristic of the disease which makes it particularly distressing.

Today the oncology community have no effective treatments for this cancer, nor can they provide any form of reliable prognosis.  Its rarity means that governments, the pharmaceutical industry and even bigger cancer charities, do not provide funding for research. For this reason, we are dedicated to raising funds to carry forward the research which is critical to further understanding EHE and maybe provide answers to the many questions which come with a diagnosis of this rare cancer.

Find out more about EHE, and the charity, at www.EHERCC.org.uk

We hope to join other charity members on 24th April in Richmond Park. Please support EHERCC by making a donation to this page. Any donation, however small, makes a difference. Thankyou.