Story
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We have decided to take part in Tough Mudder on 25th June 2016 and would like to raise as much money as possible for a great charity that does great things for people who have a rare metabolic disorder called Phenylketonuria (PKU)
NSPKU exists to help & support people with PKU, their families & carers. It works closely with medical professionals in the UK. It receives no government funding & is dependent on the generosity of its members & the public to fund practical support, raising awareness & research into the condition.
What is PKU you ask? The following link should give you a bit more info about Phenylketonuria
Rachel's son Lewis was born with PKU and was diagnosed at 9 days old, he has classic PKU , meaning his body has very little tolerance for phenyalanine and has to stick to a strict low protein diet for life and can never eat meat, eggs cheese or fish because of the high protein content, failure to adhere to the strict diet could lead to permanent brain damage, so by taking part in Tough Mudder the team have decided to try and raise cash to donate to NSPKU who offer great support to people with PKU and their families and carers by organising family days that let people with PKU meet and get to know others who suffer from the same disorder or arranging cooking classes to help people with PKU and family members prepare and get new ideas for special low protein foods, this along side all the research and raising awareness is dependant on member and public funding, so please donate whatever you can to this amazing charity.
thanks for taking the time to read my story x
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