Charlotte Taylor

Debbie's page

Fundraising for Ehlers-Danlos Support UK
£3,859
raised of £1,000 target
Donations cannot currently be made to this page
In memory of Ryan Luke Eaton
Ehlers-Danlos Support UK

Verified by JustGiving

RCN 1157027
We educate, inform and raise awareness to support those living with Ehlers-Danlos

Story

Thanks for taking the time to visit my JustGiving page.

We would like to help Ryan fulfill his dream that one day Ehlers-Danlos Syndrome would be consigned to the history books! 

For this to become a reality things must change!

Your donations will:  Help to raise the profile of EDS.  Help to increase the level of funding for research.  Help those living with EDS to look forward with HOPE. 

Why?

Ryan Luke Eaton  (Facebook: R.I.P Ryan Eaton. 27/02/92-23/10/09)

 27/02/92 - 23/10/09

Ryan suffered from a very rare condition called Ehlers-Danlos Syndrome Type IV Vascular and he only disclosed the full implications to very few people. He didn't want to frighten anyone!

On Friday 23 October 2009, without warning Ryan collapsed from an aortic dissection (a complication of EDS Type IV) and despite the very best efforts of the medical staff at Poole General Hospital Ryan could not be saved.

Our hearts are filled with pride for our son who lived his life to the full with such courage and determination. Ryan carried an awesome burden with dignity yet still managed to always put others first. 

We are truly honoured to have been his Mum and Dad, night mate love you lots. xx

On 12 November 2011 I (Debbie, Ryan's mum & also a Vascular EDS sufferer) had a spontaneous rupture of my splenic aneurysm and amazingly, against all the odds, I survived. As our way of trying to say 'Thank you' to the surgeon, Mr Qureshi, Rob (Debbie's husband/Ryan's dad) is fundraising for Poole Hospital Charity in order to get some essential equipment for Mr Qureshi. Rob's fundraising page can be found by clicking on the following link. www.justgiving.com/Robert-Eaton

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

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About the charity

Ehlers-Danlos Support UK

Verified by JustGiving

RCN 1157027
Ehlers-Danlos Support UK is a registered charity supporting people who suffer from Ehlers-Danlos Syndrome (EDS). EDS UK is here to support people who have EDS, educate those who need to learn more, and raise funds to enable further research and development.

Donation summary

Total raised
£3,858.44
+ £699.13 Gift Aid
Online donations
£2,908.44
Offline donations
£950.00

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