Elaine Phillpot

Remembering Sarah

Fundraising for IIH UK
£5,213
raised of £1,000 target
Donations cannot currently be made to this page
IIH UK

Verified by JustGiving

RCN 1143522
We raise the profile of IIH to Improve the lives of sufferers

Story

<p style="background: #F7F7F7;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Sarah suffered from IIH, a debilitating incurable brain disease. After an 11 month battle and over 22&nbsp; operations, most of which were brain operations&nbsp;Sarah passed on 6/9/2011 at the age of 23.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Many people havnt heard of IIH - Sarah even tought her GP about the disease.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">We need to make people aware of this disease and get money into the charity to fund possible cures.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">The quote below is from someone suffering from IIH:</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Imagine your head feels as though it's been crushed by a vice, a headache unlike anything you've ever felt before, where every part of your head hurts and the pressure is unbearable, and it's a pain no-one can see.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Imagine a world in permanent soft focus, where things come in twos, where things disappear momentarily, where you can't tell how deep a step is, where bright light is a pain you can't stand.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Imagine a world that sways around you, where you feel as though you're in the middle of a storm on a cross channel ferry, feeling dizzy and sick - yet you're standing still.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Imagine you're so totally exhausted that your body doesn't want to move and all you want to do is sleep, yet an incessant roaring in your ears keeps you awake.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Imagine feeling lost and fearful, confused in a place you used to know well.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Welcome to the world of IIH!</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Copyrighted to Rachel Turner IIH UK</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">So please dig deep and donate now.</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span class="mw-headline">&nbsp;</span></p> <p><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">&nbsp;</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">&nbsp;</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;"><span style="font-size: 8.0pt; font-family: &amp;amp;amp;amp; color: black;">&nbsp;</span></p> <p style="text-align: left; padding-top: 5px; padding-right: 10px; padding-bottom: 5px; padding-left: 10px;">&nbsp;</p>

Share this story

Help Elaine Phillpot

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

IIH UK

Verified by JustGiving

RCN 1143522
IIH UK aims to provide the best possible support network for IIH sufferers and their families, to raise awareness and understanding of IIH within the general public and medical community and to champion and support medical research into finding a cure for the condition. Charity Number 1143522

Donation summary

Total raised
£5,212.74
+ £272.94 Gift Aid
Online donations
£1,587.74
Offline donations
£3,625.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.