Heather Sheard

In memory of Sian Probert April 7th 1984 - December 9th 2014, sufferer of Sturge Weber Syndrome

Fundraising for Sturge Weber UK
£3,054
raised of £500 target
Donations cannot currently be made to this page
In memory of Sian Probert
Sturge Weber UK

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RCN 1016688
We provide information & raise awareness to support families and children with SWS

Story

Sian Kimberley Evelyn Probert

Our darling Sian suffered a stroke at the age of 12 when she was temporarily paralysed on her left side. From that time on her life was challenging.  She had to deal with excruciating headaches that left her crying in pain, severe seizures that frequently threatened her life and the need to take a variety of anti-convulsant medication for the rest of her life. 

She suffered tiredness, severe mood swings, depression and personality issues as a result of her illness and medication yet she never complained, she never wanted to burden anyone and her biggest wish was to just 'be normal'

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About the charity

Sturge Weber UK

Verified by JustGiving

RCN 1016688
Sturge Weber UK is a volunteer run support group for families and adult sufferers affected by Sturge-Weber syndrome, a rare neurological disorder. A registered charity, it was launched in 1990 as a independent group by the disability support organisation Contact a Family. www.sturgeweber.org.uk

Donation summary

Total raised
£3,053.03
+ £520.88 Gift Aid
Online donations
£3,053.03
Offline donations
£0.00

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